Tomm Tennent was born in 1993 with an extremely rare condition that baffled doctors—he had excess skin, making him a medical enigma. His parents, Geoff and Debbie, were unsure whether to continue with the pregnancy when they first learned something was wrong. Geoff recalled, “We decided what’s meant to be is meant to be.”
Despite extensive testing, doctors couldn’t diagnose Tomm’s condition or offer treatment. At birth, Debbie was shocked, saying, “It was nice to pick him up and hug him, but my heart was racing.” Doctors eventually discovered Tomm had 100 times the normal amount of hyaluronic acid, similar to Shar Pei puppies. They hoped his skin would normalize as he grew.
As Tomm grew older, he faced challenges, especially at school where some kids teased him. However, Tomm stayed positive, saying, “They don’t really care how I look.” By 2003, he embraced his uniqueness, adding, “I see a kind, loving person when I look in the mirror.”
Now 28, Tomm is happily married and lives a content life in Australia. His outlook remains simple: “You make choices, and you don’t look back.” His story serves as an inspiration of resilience and self-acceptance.
“People Only Know Me as a Freak,” The Wolf Man Struggles to Find a Job Outside the Circus
Jesús Aceves has hypertrichosis, which makes his hair grow abundantly over his face and back. Because of his condition, he’s also known as The Wolf Man. But he’s tired of this alias and wants to live a normal life.
Meet Jesús Aceves, a 55-year-old man born with a condition called hypertrichosis, which means he has abnormal hair growth over his body, especially his face. Although married with kids, Jesús isn’t fully happy with his living conditions. He says he and his family suffer discrimination. In an interview, one of his kids mentioned, “People call me names, and they even tell their kids not to be my friends.”
© Chuy, El hombre lobo / Chuy, The Wolf Man / Facebook
He worked in the circus all his life, traveling through several cities. But now, he’s tired of being seen as a freak. As a consequence of years on the road, he’s been known as The Wolf Man.
Back home and not in the circus anymore, he’s facing another challenge: finding a “normal” job. He needs to support his family since his wife works in temporary jobs.
After several failed job interviews, he agreed to try something he had always avoided: shave his face. He relied on his family barber to transform him, even creating eyebrows and lashes.
The experience was difficult since the face is an extremely sensitive body area, but both he and his wife believed that simply by shaving, he would be able to find a job.
Jesús did several interviews, and it’s confident that now he’ll find somewhere to work besides the circus. If this happens, he must shave his face every 2 days.
Although rare, some conditions aren’t impossible to have. Luckily, people find a way to overcome the difficulties a rare condition brings and strive in life. Hannah Tyre, for example, was born with osteogenesis imperfecta, meaning that her bones break very easily. But her love for makeup made her an internet influencer, reaching millions of followers. We hope that, by reaching the mainstream media, people with genetic diseases won’t suffer more discrimination.
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