Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
\
Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
INSIDE MARIAH CAREY’S SHOCKING SILENCE: WHAT HAPPENED BEFORE HER SISTER’S DEATH?
Mariah Carey did not talk to her sister, Alison, before she died. The reason? Alison’s struggle with drug addiction created a big distance between the two sisters.
Sources close to the family shared with TMZ that Mariah did not reach out to Alison in her final days. Instead, she spent the last week with their mother, Patricia, who was also very ill.
Mariah was not in contact with Alison, and sources say it’s because Alison struggled with addiction for many years. Mariah had tried to help her sister emotionally and financially, but it wasn’t enough to help Alison get clean.
Eventually, Mariah felt she had to show Alison tough love. She didn’t want to enable her sister’s behavior, so she decided to cut off contact and distance herself from Alison.
As we reported, Alison passed away over the weekend—the same day their mother died—without any contact from Mariah.
Mariah talked about her relationships with her mom and sister in her 2020 memoir, *The Meaning of Mariah Carey*. In the book, she claimed that Alison had once “drugged me with Valium, offered me a pinky nail full of cocaine, inflicted me with third-degree burns, and tried to sell me out to a pimp.”
Leave a Reply