Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.
For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.
Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.
The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.
Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.
Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.
“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.
Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.
Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.
But despite her suffering, she remains upbeat and happy and has even found love.
She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.
He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.
”He came and he showed me that I could live a true love story”, she says.
But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.
”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.
Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.
”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.
A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:
”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.
“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”
His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.
Karine wants others to realize the importance of being positive.
”Be happy, smile, because life happens only once,” she said.
In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.
Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.
Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.
Howie Mandel opens up on his condition
On “The Kelly Clarkson Show,” Mandel discussed his struggles with mental illness. He confessed that his celebrity status had a negative impact on his mental health, not a positive one.
From the outside, he sometimes seems cheerful, but when he’s at home, especially alone, he stated that’s not the case.
When Kelly Clarkson heard this, she was shocked. Mandel then acknowledged, “I’m heavily medicated.” Clarkson found it hard to comprehend that someone would make derogatory remarks about her.
Since he was a young child, Howard Stern has battled anxiety and OCD. He has said that he has had these ailments for almost his entire life.
Because he didn’t have any classmates to make friends with when he was younger, he was labeled “strange.” Though he believes he gets paid to be strange, he now finds that every day is a struggle. America’s Got Talent has Stern on the panel as a judge.
Mandel claims to be experiencing a nightmare and tries to ground himself. He has a lovely family and enjoys his work, yet he can also experience deep sadness from which he cannot recover.
He shared a lot of worry during the COVID-19 epidemic because he always has the thought, “We could die,” running through his head. But the fact that everyone in his immediate vicinity was okay would comfort him. But the world as a whole was in horrible shape [during the pandemic].
Up until 2006, Mandel kept his illnesses a secret from the public. He was ashamed and concerned that if his instability were discovered, he wouldn’t be able to obtain employment.
Mandel’s initial concern was that he had let his family down, but he later understood that if it was discovered that he wasn’t stable, he might not be employed.
Howie Mandel, the comedian, has struggled with severe depression for a long time. Mandel acknowledges that, even though he still experiences dark and terrible periods, the general public may not fully understand the severity of his depression.
Like other comedians, he utilizes comedy to deal with his disability. He claims that comedy saved him, and he feels most at ease performing.
Mandel claimed that he is now coming forth about his struggles with mental illness because he wants to end the stigma.
He is aware that enduring all of this will not be simple, but he has faith that despite his difficulties, he will continue to treasure the times when his life is not shadowed by darkness.
Mandel is aware that some people find his battles with mental illness amusing, but that doesn’t mean they aren’t terrible for him.
Despite his obstacles, he is optimistic that he can end the stigma associated with mental health issues. It won’t be simple for him to keep his mental health, but he wants to.
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