Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Rose Hanbury breaks silence to answer allegations over Prince William affair
Oh, what a time to be a royal enthusiast. There have been an untold number of well-publicized royal scandals over the years, many points in history where the ongoings of the British monarchy have dominated newspaper headlines and whipped the general public into a frenzy. The current state of affairs must surely rank among the most tantalizing. Not only has the whole saga regarding Kate Middleton’s recovery from a mysterious abdominal procedure captivated all and sundry since January,
but King Charles also received a shock cancer diagnosis. That’s not to mention the ever-present controversy where Prince Harry and Meghan Markle are concerned. In most other decades the reigning monarch’s fight against cancer would be the focal point of the media attention. It speaks volumes, then, that the maelstrom of speculation surrounding Kate has virtually pushed all other topics into the shadows. It could be argued that the royals only have themselves to blame for the intense scrutiny placed upon Kate’s recovery. Aside from confirming that the Princess of Wales was undergoing a “planned abdominal procedure” in January, adding that she would be out of action until around Easter time, the Palace has been thrifty to the point of arousing suspicion with its updates. Just what Kate was suffering from that required surgery remains unknown to the public. Compounding the sense of confusion was the fact that Kate – until last week – hadn’t been seen since Christmas. And if the vacuum of concrete information brought the pot of speculation to boiling point, the debacle surrounding the image of Kate and her children released to mark Mother’s Day in the UK blew the lid off with such force that the various conspiracy theories suddenly became of interest worldwide. Among the mostly hotly debated possibilities was that Kate and Prince William were experiencing marital troubles, the likes of which had left Kate with no option but to withdraw from the spotlight until a solution could be found. At this stage we’d be remiss in our duties if we didn’t point out that any and all reports of William and Kate’s romance being in crisis remain unconfirmed. That said, the topic has generated enough attention to make it an undeniable fact that the public are at the very least extremely intrigued. The crux of the aforementioned marital bother William and Kate are purported to have found themselves in centers around the rumor that William had engaged in an affair with Rose Hanbury, the Marchioness of Cholmondeley. According to reports, Rose and her husband David Rocksavage, the 7th Marquess of Cholmondeley, have been in William and Kate’s social circle for some time. Once upon a time, the ever-reliable Sun newspaper tried to flog speculation that Kate and Rose had a falling out (leading to a not-insignificant amount of people claiming the cause was an affair between Rose and William). And it seems as though that candle of scandal continues to burn even today, some five years since The Sun published the aforesaid information. Last week there were multiple articles written about Rose – in the midst of the media throng to find out where Kate Middleton was – with some news outlets even being accused of ‘soft-launching’ the Marchioness in preparation for a time wherein her alleged affair with William became official news. Of course, the outlandish rumors appear to be just that… outlandish. Even so, Rose Hanbury herself was bothered enough to break her silence and firmly deny that any affair had ever taken place. As per reports, Business Insider reached out to Rose’s lawyers this weekend for comment. The reply they got read: “The rumors are completely false.” So there you have it… case closed, perhaps, maybe, for now. What do you think to the incessant speculation about Kate Middleton and Prince William? Let us know in the comments.
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