The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Diver swam in Hawaii: dolphin asked him for help
In Hawaii, divers were swimming with manta rays when all of a sudden, one approached a dolphin. It approached one of the divers quite closely, as though it needed assistance. Divers understood what it wanted very soon.
Its fin was found to be stuck with a fishing line and hook, which undoubtedly caused it great discomfort and made it difficult for it to swim.
He took great care to remove the hook, but his task was not yet done. There is still tangle of fishing line around the fin.
The diver’s scissors came in handy, allowing him to release the dolphin. When the dolphin broke free, he bid it farewell.
The level of intelligence in these organisms is astounding. When a dolphin approached the diver in need of assistance, he gave it. Before it took off, it gave him a quick glance as though to say “thank you.”
Keller Laros, a stingray expert and certified diving instructor, supplied the photos. He utilizes his photos to investigate manta rays because he is an obsessive underwater photographer.
In addition, Laros is president and co-founder of the non-profit Manta Pacific study Foundation, which is committed to “research and protection of manta rays and the marine environment.”
Throughout his career, this significant work allowed Lars to release numerous law enforcement officers and sea turtles from fishing nets (which is why he carried scissors). However, this was the first occasion a dolphin approached the diver in need of assistance.
Luckily, someone recorded this heartfelt encounter, and it has been viewed millions of times since. On his website, Laros stated, “It was a really amazing experience.”
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