The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Tito Jackson, brother of Michael Jackson and co-founder of Jackson 5, dead at 70, sons say
Tito Jackson, brother of the late Michael Jackson and co-founder of the Jackson 5, has died. He was 70 years old.
His family made the stunning announcement Sunday.
“It’s with heavy hearts that we announce that our beloved father, Rock & Roll Hall of Famer Tito Jackson is no longer with us,” Tito’s sons TJ, Taj and Taryll said in a statement on Instagram. “We are shocked, saddened and heartbroken.”
While an official cause of death has yet to be determined, Steve Manning, former Jackson family manager, told Entertainment Tonight, he believed the pop icon died of a heart attack while driving from New Mexico to Oklahoma on Sunday.
Tito, born Toriano Adaryll “Tito” Jackson in October 1953 and the third of 10 children, was the least-heard member of the Jackson 5 as he was a backup singer and played guitar for the group, while his brothers Jackie, Tito, Jermaine, Marlon, and Michael were more prominently featured.
During their time as the Jackson 5, the family produced several No. 1 hits in the 1970s including “ABC,” “I Want You Back,” and “I’ll Be There.” They were inducted into the Rock & Roll Hall of Fame in 1997.
Tito was last seen in Munich, Germany, on September 9, prior to a scheduled performance with his brothers Jackie and Marlon Jackson. The trio have two more performances left on their 2024 tour, however it’s unclear how The Jacksons will handle the upcoming shows.
“Some of you may know him as Tito Jackson from the legendary Jackson 5, some may know him as ‘Coach Tito’ or some know him as ‘Poppa T.’ Nevertheless, he will be missed tremendously. It will forever be ‘Tito Time’ for us. Please remember to do what our father always preached and that is ‘Love One Another.’ We love you Pops,” his sons wrote on their own music group’s Instagram page.
It is devastating to hear the news about Tito Jackson. May he rest in peace, and may his family find comfort in knowing that so many people are thinking of them during this extremely difficult time.
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