Meet Twins with the Rare Benjamin Button Syndrome, Who Became Symbols of Resilience

In a small Brazilian town, there resides an extraordinary duo of identical twins named Elis and Eloá. Their story serves as a beacon of resilience and the remarkable power of the human spirit. Afflicted with Hutchinson-Gilford Progeria Syndrome, a rare and fatal genetic disorder causing accelerated aging, these twins confront their adversities with remarkable grace and strength, earning admiration from people worldwide.

Understanding Hutchinson-Gilford Progeria syndrome

HGPS stands as an exceptionally rare disorder, impacting roughly 1 in 20 million newborns globally. Marked by rapid aging from early childhood, individuals with progeria often display growth delays, diminished body fat and hair, prematurely aged skin, joint stiffness, and severe cardiovascular issues. Typically, those with HGPS have an average life expectancy of about 14.5 years, though some may extend into their late teens or early twenties. This syndrome gained public attention through the film The Curious Case of Benjamin Button.

The condition is caused by a mutation in the LMNA gene, which produces the lamin A protein responsible for maintaining the structural integrity of the cell nucleus. The mutation results in the production of an abnormal version of the protein, called progerin, which causes cells to become unstable and die prematurely.

Elis and Eloá’s journey

Elis and Eloá swiftly captured attention because of their distinctive medical condition. Despite the physical hurdles imposed by progeria, their contagious smiles and steadfast optimism have emerged as beacons of hope and inspiration. Guilherme and Elismar, the twins’ parents, have dedicated their lives to offering the utmost care for their daughters, striving to ensure they experience as normal a life as feasible within the confines of their condition.

The family’s path has been far from easy. Their daily life is filled with demanding medical routines, including physiotherapy, aimed at addressing joint stiffness and preserving mobility. Despite these challenges, Elis and Eloá approach each day with remarkable bravery and an unparalleled enthusiasm for life, which is truly remarkable.

A global community of support

Elis and Eloá’s narrative has touched hearts worldwide, sparking a surge of solidarity from individuals and groups committed to promoting awareness about progeria and backing research endeavors. The Progeria Research Foundation, a pivotal entity in this realm, has played a vital role in propelling research forward and furnishing assistance to families grappling with the condition.

Through social media platforms, the twins’ journey is shared with a broad audience, fostering a sense of community and solidarity. Their family’s updates, documenting both the highs and lows of their daily lives, provide invaluable insights into the realities of living with progeria, while also spreading a message of hope and perseverance.

Advances in research and hope for the future

In recent years, there have been remarkable advancements in comprehending and addressing progeria. A notable milestone occurred in 2020 when the U.S. Food and Drug Administration (FDA) granted approval for the first progeria treatment: lonafarnib. This medication has demonstrated efficacy in prolonging the lives of children with progeria by mitigating the accumulation of progerin in cells, thereby decelerating the disease’s advancement.

Though a cure remains elusive, ongoing research presents promising prospects. Scientists are delving into gene-editing methodologies, like CRISPR, as potential means to rectify the genetic mutation at its root. For families such as Elis and Eloá’s, these breakthroughs offer a ray of hope for the future.

And in our other article, we recounted the remarkable story of a girl born without a nose, affectionately dubbed “Voldemort,” who refuses to let her differences define her.

A woman who died and came back to life after 11 minutes has shared what she experienced during that time.

A woman named Charlotte Holmes said she spent 11 minutes in heaven after a near-death experience and shared the amazing things she saw in the afterlife.

In September 2019, Charlotte was at a routine check-up with her heart doctor when her blood pressure suddenly shot up to a dangerous 234/134. The doctors told her she might be having another stroke or a heart attack.

She was taken to the hospital while her husband, Danny, watched helplessly. He recalled the moment he thought he might lose her, saying, “Immediately, they called a code, and everyone rushed in. They started working on her, and I wondered if I would even be able to bring her home.”

As Charlotte’s condition got worse, she began to describe things she could see, like flowers. But when Danny looked around the room and realized there were no flowers, he realized something incredible. “That’s when I knew she was not in this world,” he said.

Charlotte Holmes was declared clinically dead for 11 minutes (YouTube/The 700 Club)

Charlotte’s heart had stopped, and for the next 11 minutes, she was clinically dead. But during that time, she said she was looking down at her lifeless body while watching doctors and nurses try to bring her back.

“I could smell the most beautiful flowers I’ve ever smelled, and then I heard music,” she remembered. “When I opened my eyes, I knew where I was. I knew I was in heaven.”

Charlotte, who lives in Wichita, Kansas, described being surrounded by incredible beauty in every direction. She watched everything sway in time with the music she could hear.

“I can’t explain what heaven looked like because it’s so much more amazing than we can imagine,” she said. Then, a group of angels led her deeper into the afterlife.

“There’s no fear, just pure joy when the angels are with you,” she continued. “I saw my mom, my dad, my sister, and other family members standing behind them.”

Write this in easy human language:
“I seen saints of old,” the mum explained. “They didn’t look old, they didn’t look sick, none of them wore glasses. They looked like they were in their 30s. Yet it says in the scriptures, ‘we will be known as we were known’.

“I knew them there in their new bodies. They looked wonderful.”

Charlotte then revealed that she saw a toddler, which left her quite confused.

She said: “I can remember thinking, ‘who is this?’ And I heard my heavenly father say to me, ‘It’s your child.’

“I lost that child. I was five-and-a-half months pregnant. I can remember them holding the baby up and saying, ‘Charlotte, it’s a boy’. Then he was gone. So when I seen this toddler, I said, ‘God, how is that possible?’

“He said, ‘They continue to grow in heaven – but there’s no time, it’s eternity’.”

Charlotte then claimed that she was taken to a place that was the complete opposite of the paradise she had just enjoyed.

“God took me to hell, and I looked down and the smell, and the rotten flesh – that’s what it smelled like…and screams,” she explained. “After seeing the beauty of heaven, the contrast to seeing hell is almost unbearable.”

Detailing why she was taken there, Charlotte said: “And he says, ‘I show you this to tell you, if some of them do not change their ways, this is where they shall reside.’ I heard my father say, ‘You have time to go back and share’.”

She then described how she felt herself being ‘drawn back into’ her body, while Danny noticed her eye twitched.

Charlotte – who went on to make a full recovery and was released from hospital after two weeks – said: “I felt the pain, where I hadn’t felt pain, I felt the sorrow.”

Following her near-death experience, she decided to share her incredible story with others.

“People need hope,” Charlotte said. “They want to know that there really is something out there, they want to know that everything’s okay. Heaven is more than you can imagine.

“I can look you square in the eye and tell you for sure, heaven is real.”

According to The Ozark County Times, Charlotte passed away on November 28, 2023, at the age of 72 after suffering a heart attack. She was survived by her husband of 52 years and their daughter Chrystal, as well as her grandchildren.

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