Mom of Boy with Rare Condition Shares Their Life, People React Differently

Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.

At first, everything seemed normal.

Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.

For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.

Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.

Then the news of the diagnosis hit the parents, something no one could have anticipated.

As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.

Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.

Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.

In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.

His mother uses social media to spread awareness about his condition.

At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.

Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.

Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.

Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.

As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”

People in comments react differently.

Mostly people express support and empathy.

But some show a bit of skepticism.

  • Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
  • I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram

Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.

Science Shows That Women Sleep Better Next To Dogs Than Men

The importance of sleep for one’s health should go without saying. The ideal approach to obtain restful sleep is a topic of great interest to a large number of researchers. But forget about meditating before bed and drinking chamomile tea. It has been found that women sleep better when their dogs are nearby. That’s correct, a study by Canisius College in New York State revealed that dogs make more comfortable sleeping companions than either people or cats.

Christy Hoffman, Ph.D., an animal behaviorist and the study’s chief researcher, said, “We found that women commonly rate dogs as better bed partners than cats and human partners and report that their dogs enhance their sleep quality.”

According to Research, Women Sleep Better Next to Dogs

Hoffman arrived at these conclusions after surveying almost a thousand American women. According to the findings, 31% of the participants and 55% of the participants shared a bed with a cat or a dog. Moreover, 57% of these ladies slept in the same bed as a human companion, compared to the other 40%.[1]

Hoffman also found out why dogs appeared to be the most comfortable bedmates.The first explanation is that dogs’ sleeping habits more closely reflect human sleep patterns than those of cats.

Hoffman stated, “It is not surprising that dogs and cats have different sleep schedules because dogs’ major sleep periods tend to coincide more closely with humans’ than do cats’.”

Even though these similar sleeping habits might have advantages, additional research is necessary to be certain. However, Hoffman has some ideas about how this might function.

She said, “Dogs may be better at accommodating their human’s sleep schedule than human bed partners.” Human bed companions frequently go to sleep and wake up at significantly different times from one another. Sleep disruption is undoubtedly a result of schedule discrepancies between spouses. It’s possible that canine bed companions adjust to their owner’s schedule more easily than do human bed partners.

Dogs also need specific routines and obligations, like an early morning stroll. These kinds of regimens support their users in sticking to a schedule, which enhances the quality of their sleep.

\Calm and Safety

Dogs also have a tendency to remain rigid during sleep. Anyone who has ever shared a bed with a fidgety partner understands how annoying they can be. Nonetheless, the study’s female participants stated that, in contrast to cats, who tended to come and go, their dogs spent the most of the night on the bed.

This implies that cats might be more prone than dogs to disturb sleep by getting in and out of bed at different times. Furthermore, Hoffman stated, “We discovered that dog owners tended to go to bed and wake up earlier than cat owners and also adhered to more regular bedtime and wake time schedules.”

The third and most crucial reason is that dogs provide their owners a sense of security.more so than in relationships with humans or even cats.

“Some dog owners may find solace in the knowledge that their pet will notify them in the event of an intruder or other emergency; also, a dog’s barking may dissuade a possible invader. Hoffman stated that whereas a dog may offer psychological consolation, a cat is less likely to assume this function.

The Ideal Sleep Partner

Dogs are the ideal sleeping companions, according to the study, although their advantages vary depending on the situation.A dog might, for instance, snore or overheat the bed. Furthermore, a lot of owners report that their cats aid in their ability to go asleep.

Remember that the study relied on the volunteers’ perceptions of the effects of their pets on the quantity and quality of their sleep. Therefore, further impartial study is required before it can be said with certainty that dogs make better sleeping companions. Nonetheless, Hoffman thinks that since pets are common in American homes, these research might be helpful.

“This line of research will be valuable to develop a clearer picture of the contexts under which co-sleeping with a pet may be detrimental to one’s sleep quality, and the contexts under which pets and their presence in their owner’s bed may positively impact sleep quality,” the spokesperson stated.

For example, studies have indicated that women sleep better on their alone than in the company of a human, but many people hold the opposite view. In the future, scientists may employ Fitbit-like gadgets to measure people’s sleep quality objectively under various sleeping scenarios.

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