Rebecca Callaghan faced a challenging pregnancy in 2012 when doctors decided to induce labor early due to excess fluid around her baby.
It wasn’t until about an hour after Matilda was born that any issues were suspected. Initially, a large blue mark on her face and extending down her body was mistaken for a bruise. However, just 30 minutes later, doctors informed Rebecca and her husband that it was, in fact, a birthmark.
Two weeks postpartum, Matilda was diagnosed with Sturge-Weber syndrome, a rare neurological condition associated with skin abnormalities that can lead to paralysis, learning difficulties, and seizures.
Matilda’s health quickly deteriorated, necessitating her transfer to Alder Hey Children’s Hospital in Liverpool, England. The parents’ joy transformed into deep anxiety, as they feared they might lose their newborn. “We couldn’t travel with her because she was so sick. Watching her taken away, we were terrified we’d never see her again”, her father shared with the Daily Mail.
Adding to their worries, they discovered Matilda had two heart defects. Despite the grim prognosis, she displayed remarkable resilience, successfully undergoing surgery. She also began laser treatments to address her unusual birthmark, a process that could take up to 16 hours to fully fade.
“She receives treatments every two months. The laser leaves her skin red and covered in blisters, which eventually heal”, her father, Paul, explained in a 2016 interview. He recounted the misconceptions from others, stating: “People assume we’ve somehow harmed her”.
Although these treatments are painful, Matilda is a cheerful child. Sadly, many stare at her or make hurtful remarks, even asking if her parents had caused her birthmark by allowing her to burn herself. “They only see the surface and make judgments. I wish they could see beyond the mole to the beautiful person she is”, Paul lamented.
In addition to her birthmark, Matilda faces vision challenges and struggles to walk. Yet, with the help of specialized equipment, she has taken steps on her own.
Despite her struggles, Matilda remains upbeat and resilient. “She’s incredibly stubborn; she’ll do things her way or not at all!” her father noted, emphasizing that she always greets others with a smile. The family regularly confronts stares, insults, and teasing, but they remain proud of Matilda. “Despite everything, she’s thriving”, her father said.
Now nine years old, Matilda’s family recently shared an updated photo of her in her wheelchair in June 2019. They have set up a fundraising page to raise £5,000 for a new wheelchair, enabling Matilda to enjoy her favorite activity: spending time outdoors, away from crowds. “We want to help her continue doing what she loves”, the page states.
Two nights ago, I went to bed early because I’m currently 34 weeks pregnant, about to pop any day now.
Thirty-four weeks pregnant and fast asleep, I was jolted awake by my husband’s urgent cries in the dead of night. What followed shattered my world, and by morning, I knew I had no choice but to file for divorce. As my due date looms just two weeks away, I should be filled with excitement for the arrival of our baby. Instead, my heart is heavy with sorrow. My name is Mary, and this is the story of how one terrible night changed everything. It’s been five years since Daniel and I first met, and for the most part, our marriage…
Leave a Reply