Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

My Husband Refused to Take Photos of Me on Our Vacation — His Reason Shocked Me, but My Revenge Left Him in Tears

Hannah here, hello to all of you. I feel compelled to tell this experience even if it is tough to do so. I am 38 years old, the mother of two wonderful children, ages five and seven, and I have been married to my husband, Luke, for almost ten years. Like any couple, we have faced our fair share of difficulties. But more than anything else we’ve experienced, something that occurred on our most recent trip to Mexico truly startled me.

Envision the following: we are in Mexico, surrounded by breathtaking beaches and exquisite weather. This excursion had me giddy with anticipation. Admittedly, I had meticulously prepared everything since, well, I rarely get a break as a mom.

Our goal for this time together was to rekindle our relationship, unwind, and simply enjoy each other’s company. But Luke was acting strangely from the beginning. He would always say no when I asked him to take a picture with me or of me.

He might say, “I’m not in the mood,” or, “Can we do it later?” I didn’t give it much thought at first. Perhaps he was simply fatigued from the journey? However, it continued to occur.

I was wearing a new outfit that I had purchased especially for the trip, and we were on this gorgeous beach. It’s not often that I feel good about myself, especially with two kids and everything. “Could you take a picture of me with the sunset?” I requested Luke.

“Not now, Hannah,” he muttered, with a sigh.

A white woman posing for a photo during sunset on the beach | Source: Midjourney

A Caucasian female striking a photo at dusk on the shore | Source: Midjourney

I scowled, a little offended. “Why not? It will just require a moment.

He yelled, “I said I’m not in the mood,” and turned to walk away.

That hurt. We’re on vacation, what gives him the excuse that he can’t stop and take a picture? I was perplexed and humiliated.

I saw that he was extra careful with his phone the whole trip. Every time I passed, he would conceal the screen and even carry it into the restroom. I tried to ignore the feeling in my gut that something wasn’t right.

A closeup shot of a mobile phone lying on a bed | Source: Midjourney

An image of a cell phone on a bed in close-up | Source: Midjourney

Luke was taking a shower one afternoon when I noticed his phone on the bed. The moment I picked it up, my heart raced. I had to know even though I know it’s immoral to violate someone’s privacy. I browsed his recent messages on his phone and unlocked it immediately.

A group chat with his friends was there. And my blood ran cold at what I read. “Imagine, guys, at her weight, she still wants me to take pictures of her,” he had written. In what part of the picture would she possibly fit? She has changed significantly since having birth.

A shocked woman checking a mobile phone | Source: Midjourney

A horrified female inspecting her phone | Source: Midjourney

My eyes filled with tears, and I felt as though I was gasping for air. Behind my back, this man—the father of my children and the man I loved—was saying such harsh things. I believed we were a couple and that he accepted me for who I am, but instead he was making fun of me in front of his pals.

I sat there in shock, putting his phone back. How was he able to? I was heartbroken and deceived. Even though our marriage was far from ideal, I never would have guessed he had such low regard for me. I cried in private so the kids wouldn’t hear.

A depressed woman sitting in a hotel room | Source: Midjourney

A melancholic female patronizing a lodging room | Source: Midjourney

My tears eventually stopped flowing, and I started to feel angry instead. I would not allow him to escape punishment for this. I had to take action to demonstrate to him the repercussions of his statements. That’s when it dawned on me.

I pulled out my phone and looked through the pictures I had shot on the journey. Choosing my favorites, I shared them on Facebook with the comment, “Searching for a new travel companion.” Is my appearance so unappealing that even my spouse is reluctant to have me photographed?

A woman taking a selfie on a beach | Source: Midjourney

A woman on a beach taking a selfie | Source: Midjourney

The post started receiving likes and comments almost instantly. Several of my acquaintances and friends also sent encouraging remarks. They expressed their dismay at Luke’s actions and complimented my pictures, calling me gorgeous. I did not elaborate on the details of his remarks, but the meaning was evident.

Luke realized my mood had changed as he got out of the shower. “Is everything alright?” he inquired, perhaps detecting the anxiety.

A woman using her phone while sitting in a room | Source: Midjourney

A woman sitting in a room with her phone open | Source: Midjourney

“It’s just fine,” I answered, not taking my eyes off my phone. I was unable to look him in the eye since I was still so hurt and angry.

I was still in awe over Luke’s betrayal the following day. The things he had spoken about me stayed with me. However, something occurred that caused this already complex scenario to get much more difficult.

I had learned just before our vacation that my uncle—whom I had never met—had passed away and bequeathed a sizeable estate to me.

A closeup shot of a middle-aged man signing a document | Source: Midjourney

A man in his middle years is shown signing a document up close | Source: Midjourney

I thought it would be a happy surprise to tell Luke this news, so I had planned to do so during our trip. However, after learning the truth about his true feelings for me, I chose to keep it to myself.

Luke’s mother, who had learned about the inheritance, somehow passed the message to him that morning. I had just finished packing our things and was about to call the trip when Luke entered the room with a bouquet of flowers.

I had noticed his embarrassed expression on a few other occasions when he realized he had made a mistake.

A woman packing her suitcase | Source: Midjourney

\A female individual packing her bag | Source: Midjourney

He began, “Hannah, I’m so sorry for everything,” and held the flowers out. I accepted them silently, waiting to see what more he had to say.

“I know I’ve been a jerk,” he went on. That was not the right thing for me to say. However, my dear, you can hire a trainer and drop some weight with your newfound wealth.

I was astounded by what I heard. Did he really think that an apology and a recommendation that I use my inheritance to make myself different for him would be enough? Racked with fury, I shot out, “Maybe I will, Luke. nevertheless, not so you can stare at me.

A closeup shot of a man holding a bouquet of flowers | Source: Midjourney

An image of a man clutching a bunch of flowers up close | Source: Midjourney

His expression was so precious. He thought I would simply forgive him and go on. But I had had enough. This was it—my breaking moment. “Luke, I’m divorcing you,” I stated, maintaining a calm tone despite my internal conflict.

His mouth dropped open as his eyes grew wide. Then he started crying, which surprised me. He pleaded, “Please, Hannah, don’t leave me.” “Now that I don’t have your money, all my plans are ruined. I was going to buy a new SUV to go off-road with my friends.”

A closeup shot of a man crying | Source: Midjourney

An image of a man sobbing up close | Source: Midjourney

I was in disbelief. I realized then how little he thought of me. What my money could buy him was what mattered, not our bond or our family. I fixed a pitying yet determined glance on him.

You seem to cherish my money more than I do. You won’t use my money or subject me to humiliation in order to get your SUV; you will find another way. Luke, good bye.

I left him then, feeling both strangely relieved and saddened at the same time. Though this wasn’t how I had imagined my life to go, I had to take responsibility for my happiness now.

The remainder of the day was devoted to organizing my return home and initiating the divorce proceedings. My family and friends never stopped being there for me. I was able to reclaim my self-worth and confidence with the support of each message and comment.

I came to the realization that I didn’t require Luke or anybody else to affirm my worth or beauty. I was sufficient in my own right. I made the decision to go on with my life and put my children and myself first.

In the days that followed, I began exercising because I wanted to feel stronger and healthier, not because Luke suggested it. I made more time for friends, picked up new interests, and even thought about returning to school.

I ran into Luke at the mall one day. He half-complimented me, which astonished me. “Hey!” Hannah, I almost didn’t recognize you. You appear different. How are the kids and you doing?

I said, “We’re doing great,” not wishing to carry on the discussion.

“Hannah, I wanted to ask you if…”

Luke, I’m getting late. I have to be somewhere. I apologize, I said, and I turned to go. His normally composed, self-assured face was marred by sorrow and perplexity, as I could see from the corner of my eye.

But since I could finally live my life on my terms and feel confident in my own skin, that stopped bothering me. Instead of lamenting my failed marriage, I was prepared to go on with courage and self-love.

So, what are your thoughts? Did I respond appropriately, or did I go a bit too far in my response? In my position, what would you have done differently?

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