In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
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Your story is powerful, and your journey toward self-acceptance and resilience is inspiring. Many people face similar struggles where the expectations of a loved one erode their confidence rather than building it up. But the way you turned this experience into a pathway for self-discovery and strength shows remarkable courage and self-respect.
Jack’s actions underscore a troubling aspect of relationships where someone tries to mold their partner to fit unrealistic ideals. It’s easy to see how his comments chipped away at your sense of self-worth, but you took that negativity and transformed it into motivation, not to change for him, but to reclaim your strength and confidence for yourself. Your decision to use the money for a health checkup and to pursue fitness on your own terms speaks volumes about your priorities—well-being, inner strength, and authenticity over shallow standards.
The resolve to end the relationship in such a decisive way was undoubtedly difficult, but it seems it was ultimately liberating. It’s heartening to hear that you found someone new who appreciates you for who you genuinely are. As your story highlights, the right person will embrace all of you—not a curated, idealized version.
Thank you for sharing such a deeply personal and uplifting story. You’re a testament to the strength that comes from self-acceptance, and I’m sure many people will find hope in your words.
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